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No Coffee For Idiopathic Hypersomnia Challenge!

November 30, 2015 - February 28, 2016

No Coffee For IH (2)

Did you know that the average person sleeps 8 hours a night which means, if they live to the age of 75 they will spend one third, or 25 years of their life asleep? Imagine spending as much as 50 of your 75 years asleep and the remaining 25 years fighting to wake up and struggling to stay awake!

For many people with the rare neurological sleep/wake disorder Idiopathic Hypersomnia this is their reality. People with Idiopathic Hypersomnia are literally consumed by sleep.

Very little is known about the cause, so there is no cure. There are no medications specifically approved, and the medications that are used to try counter the daytime sleepiness are rarely helpful long term. Unfortunately there are no medications to help with the extreme difficulty waking up or the sleep drunkenness (severe sleep inertia) that many people with Idiopathic Hypersomnia find so difficult to manage.

We can all relate to feeling a little groggy every now and then after waking up or feeling less than alert during the day, and did you know that coffee helps with this? Sure you did! But did you know how?

A molecule called adenosine builds up in our brains throughout our wakeful hours while our brain cells are churning through the energy used during the day. As the adenosine levels rise our brain is starting to signal that we need sleep to help clear these waste byproducts from the energy used.

How does coffee help?

Well the caffeine in coffee has a stimulating effect on the central nervous system and is able to block some of adenosine’s effects on the brain, which in turn slows down the sleep signal and helps with alertness!

For people with Idiopathic Hypersomnia even stronger stimulants are not always enough to help with alertness and it doesn’t remove the need for excessive sleep, or help them wake up in the morning. Although people with Idiopathic Hypersomnia get more than enough good quality sleep however they unfortunately don’t receive the benefits of feeling well rested and alert and they still crave even more sleep.

How can you show your support for people with Idiopathic Hypersomnia?

We know you love your morning coffee, but we are going to ask you to go without it! I know, be brave!

Why? For a couple of reasons:

  1. To show your solidarity for people with Idiopathic Hypersomnia. Ok so going without your delicious, delicious coffee and its effects on alertness will suck. But by doing this you will be showing your support for people who struggle to firstly wake up, suffer though sleep drunkenness and then try and stay awake the rest of the day!
  2. By skipping your usual café bought coffee, you can donate that money instead to Hypersomnolence Australia’s cause “Help us change the prognosis!”

Thank you for reading about our event! Now that you are up for the challenge we would love for you to show us, and everyone else that you supported us by:

  • Posting this quote to your social media accounts and commenting on our crowdfunding campaign:
    “I survived without my coffee today to support Idiopathic Hypersomnia”
  • Using the hashtags #NoCoffee4IH #ChangeThePrognosis #GivingTuesday
  • Sharing the link to our crowdfunding campaign: https://www.chuffed.org/project/help-us-change-the-prognosis or copy the shortened url for twitter: http://ow.ly/Vflt4
  • You can even post a selfie with a sign including the above information or yourself with your empty coffee cup!
  • Don’t forget to donate to our cause.
  • You can also join our event on Facebook

Thank you so much for supporting Hypersomnolence Australia and our community!



November 30, 2015
February 28


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